Archive for September, 2009

Fabrazyme Shortage Town Hall

September 29, 2009

The 3rd Town Hall sponsoned by the Genzyme Corporation to discuss the shortage of Fabrazyme for the treatment of Fabry Disease is Wednesday, September 30, 2009. Individuals with Fabry disease are invited to particpate and ask questions about the Fabrazyme shortage and how it will affect them. See www.TheNFDF.org for details.

Hello world!

September 28, 2009

It is exciting for the National Fabry Disease Foundation (NFDF) to begin the Fabry Disease Blog. We hope to provide education, awareness and news about this rare, progressive, destructive and life-threatening disease  across America and around the world. For more visit www.TheNFDF.org.