The 3rd Town Hall sponsoned by the Genzyme Corporation to discuss the shortage of Fabrazyme for the treatment of Fabry Disease is Wednesday, September 30, 2009. Individuals with Fabry disease are invited to particpate and ask questions about the Fabrazyme shortage and how it will affect them. See www.TheNFDF.org for details.
Archive for September, 2009
Fabrazyme Shortage Town Hall
September 29, 2009Hello world!
September 28, 2009It is exciting for the National Fabry Disease Foundation (NFDF) to begin the Fabry Disease Blog. We hope to provide education, awareness and news about this rare, progressive, destructive and life-threatening disease across America and around the world. For more visit www.TheNFDF.org.